For those of you who have followed my journey since being diagnosed with a bone marrow cancer called multiple myeloma in September of 2013, I wanted to bring you up to date. Myeloma, as of now, is still considered incurable but treatable. So, I have been on continuous chemotherapy since my diagnosis.
The most recent chemotherapy had been working well, but a recent PET scan has shown some new myeloma activity in a few of my bones. This is not unexpected for many of us dealing with multiple myeloma since relapse is common after initial treatment. I have recently begun a new chemotherapy drug with the hope that this will keep the myeloma under control for as long as possible.
This new drug that I am now receiving, is called Daratumumab or more commonly referred to as Darzalex. It is in a new class of drugs called monoclonal antibodies, and was just approved for use this past year. It binds itself to a marker on the surface of the cancerous myeloma cell directly affecting the cell as well as enabling the body’s own immune cells to kill the myeloma cells. As with most of the chemo drugs for myeloma, they usually only work for a period of time before losing effectiveness and then on to a new and different treatment.
In general, I feel well and am learning to live with the neuropathy of my feet as disabling as it has become. I try to push myself, by exercising as much as I am able to do, which I think is helping to make me feel better. I would recommend exercise, to the best of one’s ability, to anyone suffering a chronic disease as part of an overall treatment program.
There are, in development, new treatments for cancer in general and for multiple myeloma in particular. One of the new and exciting directions in cancer treatment involves the use of our own immune systems to fight the disease such as the drug I am currently using. Also, the rapidly expanding field of genetics also will play a big role in diagnosing and treating cancer.
Of course those of us with cancer hope to survive long enough to benefit from the new treatments on the horizon. Hopefully, in the near future as we develop a better understanding of cancer, it will, in many cases, become a mostly preventable and curable disease.
Thank you again for your prayers and well wishes.
PS: I would like to start a local support group for myeloma patients. If you, or someone you know would be interested in this, please contact me at firstname.lastname@example.org